Being Heumann: An Unrepentant Memoir of a Disability Rights Activist

身而為人: 茱蒂斯・休曼,一位身障權益鬥士的無悔回憶錄

類別 : 傳記回憶錄
ISBN:978-0807002803
頁數 : 232
出版 : Beacon Press, 2021 年 2 月 23 日
版本 : 平裝版
版權窗口 : 繁體博達代理David / 简体博達代理David

內容介紹

★Apple TV+長片製作確定!即將由《樂動心旋律(C.O.D.A.)》導演 夏安·海德Sian Heder 執導,並由英國電影學院獎(BAFTA)提名演員露絲·梅德利(Ruth Madeley)飾演主角!
★版權已售日本、韓國
★亞馬遜書店超過1000則評價,4.8顆星好評推薦;Goodreads超過6000則評分,近4.5顆星!

 

美國歷史上最具影響力的身心障礙權益倡議者之一──茱蒂斯・休曼(Judith Heumann),講述了她個人的奮鬥歷程:爭取受教育的權利、工作的權利,以及身而為人的存在權利。

 

這是一段爭取在「不為所有人而設」的世界中獲得歸屬感的故事,也是關於一位女性的行動主義之路——從布魯克林與舊金山的街頭,到華盛頓的權力中心——《身而為人: 茱蒂斯・休曼,一位身障權益鬥士的無悔回憶錄》描繪了茱蒂・休曼(Judy Heumann)一生為爭取尊重、接納與社會包容的奮鬥歷程。

 

茱蒂在18個月大時因小兒麻痺症導致癱瘓,那一刻便拉開了她不斷爭取平等、接納與包容的序幕。從被學校斥為「火災隱患」而不得其門而入,到後來因癱瘓遭拒教師執照,並成功起訴紐約市教育系統,她的諸多行動為身心障礙者的權益立下一個個開創性的先例。

 

年輕時期的茱蒂,駛著輪椅走進位於舊金山的美國衛生、教育與福利部,領導了歷史上最長時間佔領政府機關的抗爭行動——「504條款靜坐抗議(the Section 504 Sit-In)」。她與超過150位身心障礙者與支持者共同奮鬥,成功促使卡特政府落實障礙者權益的保護條款,點燃全國運動,並最終促成《美國身心障礙者法案(Disabilities Act)》的誕生! 

 

這本回憶錄紀錄了茱蒂・休曼坦率的心靈歷程與潛於內在的深層想法,並同時彰顯其為個人與群體發聲的反叛精神。透過本書,茱蒂・休曼希望以她的經歷邀請讀者一同想像、實現,與建構一個讓每個人都能真正感受到歸屬的世界。
 

作者介紹

茱蒂斯・休曼(Judith Heumann,1947–2023)是國際公認的「身心障礙權益自主生活運動」領袖。她曾擔任柯林頓與歐巴馬總統的顧問、奧斯卡提名的Netflix 紀錄片《希望之夏:身心障礙革命(Crip Camp)》的主角原型,以及美國歷史上最具影響力的身心障礙權益倡議者之一,亦是世界銀行首位「身心障礙與發展」顧問。休曼著有回憶錄《身而為人: 茱蒂斯・休曼,一位身障權益鬥士的無悔回憶錄》,她的故事也於 Netflix 紀錄片《希望之夏》中被深入介紹。

克莉絲汀·喬伊納(Kristen Joiner) 是一位作家、社會運動者及製作人。她曾與茱蒂·休曼(Judith Heumann)同擔任《身而為人: 茱蒂斯・休曼,一位身障權益鬥士的無悔回憶錄(BEING HEUMANN: An Unrepentant Memoir of a Disability Rights Activist)》以及本書青少年版《輪椅戰士:有點卡、有點狂,一個叛逆少女在顛簸中燃起革命的小大事(Rolling Warrior: The Incredible, Sometimes Awkward, True Story of a Rebel Girl on Wheels Who Helped Spark a Revolution)》的共同作者。《身而為人: 茱蒂斯・休曼,一位身障權益鬥士的無悔回憶錄》已獲得 Apple TV 選作電影改編項目,該片將由奧斯卡得獎、《樂動心旋律(C.O.D.A.)》導演夏安·海德(Sian Heder)執導。克莉絲汀亦共同創辦了青少年電影組織 Scenarios USA,並擔任由青年編劇、獲獎導演執導的短片執行製作人。她現與家人居住於紐西蘭。
 

書評

“Thoughtful and illuminating, this inspiring story is a must-read for activists and civil rights supporters.”
—Publishers Weekly, Starred Review

“A driving force in the passage of the Americans With Disabilities Act looks back on a long career of activism . . . A welcome account of politics in action, and for the best of causes.”
—Kirkus Reviews

“Consider this book an inspiring call for inclusiveness, courage, equity, and justice as well as a reminder of people’s power to change the world for the better.”
—Booklist

“Heumann’s personality shines throughout. Her voice is witty, persistent, and at times irreverent as she immerses readers in her story.”
—Library Journal

“With an energetic pace and a youthful voice, Ali Stroker narrates disability rights activist Judith Heumann’s memoir. . . . Along with her friend and mentor, the late Ed Roberts, Heumann is a freedom fighter Americans need to know. This audiobook makes getting acquainted a delight.”
—AudioFile Magazine

“Reading this memoir is like sitting down with a good friend and talking for hours, as self-described extrovert Heumann tells powerful and engaging stories from the frontlines of the disability civil rights movement.”
—Health Affairs

“A moving chronicle of social change, Being Heumann will restore your hope in our democracy and the power of our shared humanity.“
—Darren Walker, president, Ford Foundation

“Judy’s advocacy for disability rights began as a fight for her own future and then, as a leader of the movement, spanned the nation and the globe. As secretary of state, I relied on Judy’s insights, knowledge, sass, and wit to elevate advocacy for disability rights in our diplomacy. This important book will help ensure that every person gets a chance to live up to their full potential and will always have a place at the table.”
—Hillary Clinton

“It’s one of the ironies of American life that the one category into which almost all of us will fit at some time in our lives—people with disabilities—is often the last on the list of included groups in this country. . . . I met Judy Heumann almost four decades ago, and her writing, activist skills, and kindness helped me to see this simple truth. Her life story as an activist will enlighten readers everywhere.”
—Gloria Steinem

“Judy’s vision of a society that embraces all aspects of the human condition and where we face adversity with wisdom is truly transformative. . . . All who read her book will be better for it.”
—Sheryl Sandberg, COO of Facebook, author of Lean In

“Judy’s story has shaken me to the core. For the first time, I see myself in someone else. Her fierce advocacy and work changing the laws around disability rights have undeniably paved the way for me to achieve what I have today. . . . A must-read.”
—Ali Stroker, Tony Award–winning actress

“A marvelous memoir by a disability hero who has paved the way for many of us. Full of fascinating stories from the disability rights movement, this book will guide future leaders as we work toward a barrier-free world.”
—Haben Girma, author of the bestseller Haben: The Deafblind Woman Who Conquered Harvard Law

“Being Heumann changed me. This clear-eyed, gripping book is necessary reading for anyone in a body. Judy Heumann is a true heroine: practical, courageous, and totally badass.”
—Sharon Guskin, author of The Forgetting Time

“Full of stories of triumph, love, and total badassery, Being Heumann is a look into a world and moment in history that very few know or appreciate. You don’t have to have a disability to completely relate to Judy’s story. Haven’t all of us been dismissed by others at some point in our lives? Readers will finish this book with a whole new perspective on people with disabilities and on their own lives too. Judy doesn’t just believe in the power of community and the potential of democracy to deliver equality and justice—she and her many friends and allies set out to prove, against all odds, that it is true. Their epic struggle to achieve civil rights protections for people with disabilities has remade our world, whether we realize it or not. Intimate and engrossing, this book is a profound gift. It should be read and cherished by all, as both an unforgettable portrait of one of our greatest activists and a road map for how to build a more just and inclusive world.”
—Nicole Newnham and Jim LeBrecht, directors of Crip Camp

“For everyone who cares about human rights around the world, Judith Heumann’s moving story and message of belonging is also a powerful call to action. A must read.”
—Yetnebersh Nigussie, disability rights activist

“If you’re searching for an excellent primer on the disability justice movement or a firsthand account of the power of the collective voice, you’ll want to pick up this book!”
—Jey Ehrenhalt, Teaching Tolerance School-Based Programming and Grants Manager

身而為人: 茱蒂斯・休曼,一位身障權益鬥士的無悔回憶錄

Being Heumann: An Unrepentant Memoir of a Disability Rights Activist

身而為人: 茱蒂斯・休曼,一位身障權益鬥士的無悔回憶錄

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